Welcome to JJ's Journey!

A day in the life of Jenna! Jenna has Spinal Muscular Atrophy (SMA) Type 1. SMA is severe neuromuscluar disorder that effects the muscles that help her move, eat, and breathe. Currently there is no treatment or cure. For more information on SMA, please visit www.fsma.org or visit www.our-sma-angels.com/jenna!

Thursday, December 2, 2010

Christmas Wish List Program (Living w/ Spinal Muscular Atrophy)

Jenna has been home from the hospital for almost a month now and is doing well.  Her stomach has been tolerating feeds and really doing well.  She is back at it w/ therapies, webcam and homeschooling.  Actually, she has had a pretty good week this week w/ homeschool instruction.

Saturday we are going to a Christmas Concert fudraiser for The Independence Foundation, an awesome organization that helps disabled children and young adults become more independent.  Every year they run a program called the "Christmas Wish List" program, in which the fundraiser helps raise money for.  The program tries to grant wishes for these children that would help them become more independent and that insurance will not pay for.  Jenna put in a wish this year and will be receiving it that evening!  I cannot tell you what it is just yet, as it is a surprise for her!  And BOY is she going to be surprised!

For more information on The Independence Foundation, please feel free to visit their website at:  http://www.theindependencefoundation.org/

* For more information on Spinal Muscular Atrophy, please visit http://www.fsma.org/

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