Please vote for Stop SMA! Top two companies will win $250,000! That amount will fund one year of research for Spinal Muscular Atrophy! We are currently in 1st place, but we want to stay there. Please vote everyday until March 31!
Welcome to JJ's Journey!
A day in the life of Jenna! Jenna has Spinal Muscular Atrophy (SMA) Type 1. SMA is severe neuromuscluar disorder that effects the muscles that help her move, eat, and breathe. Currently there is no treatment or cure. For more information on SMA, please visit www.fsma.org or visit www.our-sma-angels.com/jenna!
Friday, March 19, 2010
Monday, March 1, 2010
Please vote for SMA! (Living with Spinal Muscular Atrophy)
Please vote for SMA.... Chance to win $250K for Research!
Spinal Muscular Atrophy is the number one genetic killer of children under two years old. Symptoms include severe weakness in the entire body. Babies are too weak to roll over, sit up, crawl. Children are too weak to stand or walk. Victims of SMA can lose head control, ability to swallow, ability to make facial expressions. Babies, kids and adults with Spinal Muscular Atrophy have weak lung capacity and which is often the cause of death. A common cold can lead to hospital stays and can cause a child to lose strength they never get back. The good news is that research is very promising. Researchers know the gene that causes SMA and the defective gene has a rare "back up" gene, that can be a source of therapy. These two facts makes SMA the neuromuscular disorder closet to a cure according to the National Institute of Health.
So let's push SMA research over the finish line and win that $250,000 grant!
Thank you!!
Spinal Muscular Atrophy is the number one genetic killer of children under two years old. Symptoms include severe weakness in the entire body. Babies are too weak to roll over, sit up, crawl. Children are too weak to stand or walk. Victims of SMA can lose head control, ability to swallow, ability to make facial expressions. Babies, kids and adults with Spinal Muscular Atrophy have weak lung capacity and which is often the cause of death. A common cold can lead to hospital stays and can cause a child to lose strength they never get back. The good news is that research is very promising. Researchers know the gene that causes SMA and the defective gene has a rare "back up" gene, that can be a source of therapy. These two facts makes SMA the neuromuscular disorder closet to a cure according to the National Institute of Health.
So let's push SMA research over the finish line and win that $250,000 grant!
Thank you!!
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