Welcome to JJ's Journey!

A day in the life of Jenna! Jenna has Spinal Muscular Atrophy (SMA) Type 1. SMA is severe neuromuscluar disorder that effects the muscles that help her move, eat, and breathe. Currently there is no treatment or cure. For more information on SMA, please visit www.fsma.org or visit www.our-sma-angels.com/jenna!

Saturday, April 10, 2010

Just catching up (Living w/ Spinal Muscular Atrophy)

Still catching up on my lack of updates. I thought I would post some videos and pics.



Just going for a walk...













Hello?





Dying Easter eggs...






Chillin' w/ Daddy on the patio...






A group shot....







Cooking in the kitchen...


Friday, April 9, 2010

Just an Update (Living w/ Spinal Muscular Atrophy)

I apologize for not updating Jenna's site regularly. We have been pretty busy lately. I will try to catch everyone up.

Last weekend we had the Easter Bunny come and hide eggs and baskets. Jenna loved "running" around the house with her sisters looking for them. Then later that day she lost her 1st tooth! So the tooth fairy visited that night. She was so excited and loved getting money from the tooth fairy!


Jenna has been doing well w/ her schooling and we are really pleased w/ how far she has come since September. We are working on plans for next year and have her IEP scheduled next month.
And I also wanted to thank everyone who has voted for The Gwendolyn Strong Foundation and for Stop SMA. Because of you, SMA has been awarded a total of $500,000 to go toward research. Our family, and many other SMA families, thank you from the bottom of our hearts.


*For more information on Spinal Muscular Atrophy, please visit http://www.fsma.org/