Respiratory, Iron, and Hospital Bed (Living w/ Spinal Muscular Atrophy)

Jenna is doing better!  We had to increase her treatments for a few days and add in a Xopenex neb 3x/day and extra "shaking" w/ the Chest Vest, but I think we got it all out.  No more desats while laying on her left side! 

She is also doing really well w/ the iron supplementation.  I am truly shoked at this b/c she has never been able to tolerate iron.  I guess after fixing her GI issues w/ her last hospital stay has also helped w/ tolerating the iron.  Whatever it is/was, I'm glad it's working now.

We are still fighting Univera Healthcare for Jenna's hospital bed.  This whole thing really gets me!  I just have a hard time believing that they have a medical policy that pretty much states that if you are 100% disabled (like Jenna) then it is not medically necessary to have an electric hospital bed.  Crazy.  Well.... I haven't given up yet.  We are doing a Self-Insured External Appeal w/ them and hopefully this outside doctor will read all the documentation and realize it is medically necessary.  I guess we will see.

So I will leave you w/ a pic of Miss Jenna enjoying her Valentine's Day.  Hope you enjoy it as much as she did!