Jenna is doing better! We had to increase her treatments for a few days and add in a Xopenex neb 3x/day and extra "shaking" w/ the Chest Vest, but I think we got it all out. No more desats while laying on her left side!
She is also doing really well w/ the iron supplementation. I am truly shoked at this b/c she has never been able to tolerate iron. I guess after fixing her GI issues w/ her last hospital stay has also helped w/ tolerating the iron. Whatever it is/was, I'm glad it's working now.
We are still fighting Univera Healthcare for Jenna's hospital bed. This whole thing really gets me! I just have a hard time believing that they have a medical policy that pretty much states that if you are 100% disabled (like Jenna) then it is not medically necessary to have an electric hospital bed. Crazy. Well.... I haven't given up yet. We are doing a Self-Insured External Appeal w/ them and hopefully this outside doctor will read all the documentation and realize it is medically necessary. I guess we will see.
So I will leave you w/ a pic of Miss Jenna enjoying her Valentine's Day. Hope you enjoy it as much as she did!