Welcome to JJ's Journey!

A day in the life of Jenna! Jenna has Spinal Muscular Atrophy (SMA) Type 1. SMA is severe neuromuscluar disorder that effects the muscles that help her move, eat, and breathe. Currently there is no treatment or cure. For more information on SMA, please visit www.fsma.org or visit www.our-sma-angels.com/jenna!

Friday, July 29, 2011

SMArt Walk For A Cure (Living w/ Spinal Muscular Atrophy)

Please join us for the 8th Annual SMArt Walk for A Cure and help find a cure for Spinal Muscular Atrophy (SMA)!

When: Saturday, August 6, 2011 - 9am Reg, 10 am Walk
Where:  Beaver Island State Park, Grand Island NY
What:  1 or 3 Mile Walk, Picnic, Basket Raffle, 50/50, Clown, Face Painting, and More!

Honorary Co-Chairs:  Senator George Maziarz and Nicholas Picholas of KISS 98.5!
Sponsored by:  WNY Chapter of FSMA

What is Spinal Muscular Atrophy (SMA)?
  • SMA is one of the most prevalent genetic disorders.
  • SMA affects the muscles in the body that control waking, swallowing, feeding, and breathing. 
  • One in every 6,000 babies is born with SMA. Of children diagnosed before age two, 50 percent will die before their second birthday.
Please join us and help us find a cure for SMA!

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