Welcome to JJ's Journey!

A day in the life of Jenna! Jenna has Spinal Muscular Atrophy (SMA) Type 1. SMA is severe neuromuscluar disorder that effects the muscles that help her move, eat, and breathe. Currently there is no treatment or cure. For more information on SMA, please visit www.fsma.org or visit www.our-sma-angels.com/jenna!

Wednesday, August 3, 2011

SMArt Walk For A Cure - Team JJs Journey (Living w/ Spinal Muscular Atrophy)

We are participating in the SMArt Walk For A Cure to benefit Families of Spinal Muscular Atrophy and I need your help! Please consider making a donation to my personal fundraising page.  SMArt Walk For A Cure - Team JJs Journey

Families of Spinal Muscular Atrophy is my charity of choice because: - One in 6,000 babies born this year will be diagnosed with SMA; - They support all those affected by SMA with critical information, resources and equipment; - Research funded by this amazing organization is providing HOPE for the development of a treatment and cure.

SMA is a devastating genetic disease that destroys the nerves that control voluntary movement. Children born with SMA may never crawl, walk, or even lift their head. Families who live with SMA turn to Families of Spinal Muscular Atrophy for information, guidance, encouragement and most importantly; HOPE.

Making a donation to Families of SMA is easy, secure and completely confidential. Just click on the link and follow the steps!
Thank you for joining me in my quest to support Families of SMA. Your tax-deductible gift will bring us one step closer to creating a world where Spinal Muscular Atrophy is treatable and curable.

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