Welcome to JJ's Journey!

A day in the life of Jenna! Jenna has Spinal Muscular Atrophy (SMA) Type 1. SMA is severe neuromuscluar disorder that effects the muscles that help her move, eat, and breathe. Currently there is no treatment or cure. For more information on SMA, please visit www.fsma.org or visit www.our-sma-angels.com/jenna!

Sunday, September 25, 2011

Prayers Needed (Living w/ Spinal Muscular Atrophy)


Jenna is sleeping on bipap at 94% o2 and HR 143. She is still getting respiratory treatments every 4 hours w/ lots of coughs in between. She has been on continuous bipap since 5 pm today. Please keep her in your thoughts and prayers that she kicks this soon. This sickness is bringing back memories of last Sept and Oct when she was so sick and hospitalized for over a month. We just don't want to go down that road again.

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