Welcome to JJ's Journey!

A day in the life of Jenna! Jenna has Spinal Muscular Atrophy (SMA) Type 1. SMA is severe neuromuscluar disorder that effects the muscles that help her move, eat, and breathe. Currently there is no treatment or cure. For more information on SMA, please visit www.fsma.org or visit www.our-sma-angels.com/jenna!

Thursday, June 2, 2011

Team Jenna - Run Away SMA! (Living w/ Spinal Muscular Atrophy)

Jenna's Aunt Renee ran her first Buffalo Half Marathon last weekend in Jenna's honor.  She raised over $1600 The Gwendolyn Strong Foundation and SMA Research!  We are SO proud of her!  Thank you Aunt Renee for all that you do!