Welcome to JJ's Journey!

A day in the life of Jenna! Jenna has Spinal Muscular Atrophy (SMA) Type 1. SMA is severe neuromuscluar disorder that effects the muscles that help her move, eat, and breathe. Currently there is no treatment or cure. For more information on SMA, please visit www.fsma.org or visit www.our-sma-angels.com/jenna!

Saturday, October 8, 2011

Shadow the Caterpillar (Living w/ Spinal Muscular Atrophy)




JJ's Journey
Spinal Muscular Atrophy (SMA)
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Saturday, October 1, 2011

Doing Better (Living w/ Spinal Muscular Atrophy)

Well Jenna is doing better.  She isn't 100% yet, but much better than a week ago.  We thought she may have ended up in the hospital, but the little fighter pulled through again.  She still needs extra coughs and suctioning, but at least it isn't every 10 minutes before.  And I am happy to report that I "slept" in my own bed last night! That is a first in probably 10+ days.  She still hasn't sat up yet.  I am hoping to try that tomorrow.  If no sitting up, then no school on Monday. :(

Speaking of school, Jenna is doing really well this year.  She always loves to go and do all the projects and see friends, etc.  She absolutely LOVES it!   She also has a great team this year too.  She did very well on her first spelling test and only got one wrong!  Little Miss Smarty Pants can't wait to get back to school!



SMA, Spinal Muscular Atophy,
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