Welcome to JJ's Journey!

A day in the life of Jenna! Jenna has Spinal Muscular Atrophy (SMA) Type 1. SMA is severe neuromuscluar disorder that effects the muscles that help her move, eat, and breathe. Currently there is no treatment or cure. For more information on SMA, please visit www.fsma.org or visit www.our-sma-angels.com/jenna!

Tuesday, November 1, 2011

Halloween (Living w/ Spinal Muscular Atrophy)

Jenna had a GREAT Halloween this year!  She totally made up for being in the hospital last year!  She was dressed up as Ariel and participated in the Eastern Hills Mall "Mall-O-Ween" on Thursday. LOVED it!  Then on All Hallow's Eve she went Trick-or-Treating for the first time EVER!  She did great.  We were really surprised on how far she went (pretty much Grandma's entire street).  And of course she totally enjoyed the Twizzler she sucked on afterward.  Then on Haloween, she went to school for the Halloween Parade and Party.  Again... LOVED it!  So here are so pics from her great Halloween week!